Maternity Experience

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Why Your MSLC Matters

Maternity Service Liaison Committees (MSLCs) provide a means of ensuring the needs of women and professionals are listened to and we saw how effective they could be when properly supported and led.”

National Maternity Review February 2016

“I urge you to play your part in creating the maternity services you want for your family and your community. Voice your opinions, just as you have during this review, and challenge those providing the services to meet your expectations.” (Julia Cumberlege, Chair of the Review Team, 2016)

These quotes really illustrate why MSLCs matter. They sum up why I am so passionate about maintaining and sustaining our wonderful Maternity Services Liaison Committee and helping others maintain theirs.

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Because I have seen the difference a dynamic, properly supported, MSLC can make to a hospital Trust. Bromley MSLC, like its counterparts throughout the country, is a mix of individuals including commissioners, service users, midwives, doctors and other professionals coming together to monitor and improve local maternity services. The respect that everyone has for each other is evident in our meetings and some of the lightbulb ideas that arise are extraordinarily exciting. I tend to come away from meetings with my head reeling, but also tremendously grateful that we have this group of extraordinary passionate, dedicated people working and living in our area.

MSLCs were first established in 1984, enabling women to be involved in shaping the maternity care provided for them. The Department of Health suggests there should be an MSLC for each Trust in England and Wales. The Health and Social Care Act of 2012 states that health services at every level need to actively engage with service users:

  • Participating in planning and making decisions about their care
  • Enabling effective participation of the public in the commissioning process itself
  • So that services reflect the needs of local people.

Recommendation 13 from the 2015 Kirkup report into the Morecombe Bay Investigation also highlighted the importance of MSLCs.

MSLCs matter because…..

  • They are the only multi-disciplinary committee of its kind in maternity, bringing together commissioners, NHS Trust staff AND the women for whom the service is designed. One third of the committee is made up of service users, including a service user rep chair and vice chair.
  • They are independent NHS working groups that advise on commissioning and service development
  • They should include service users from all parts of the community, ensuring that all women’s voices are heard.
  • They promote collaboration and involvement
  • They plan, oversee and monitor maternity services in a local area and make recommendations for improvements where necessary.

They are one of the few examples in maternity where there is true collaboration between healthcare professionals and service users on equal terms at a local level. This leads to a much greater understanding between both parties of the challenges that are faced and the issues that really matter to local women.

The National Maternity Review also highlights the consensus among health professionals to change things for the better. Nowhere is this more evident than on an MSLC!

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MSLCs can achieve amazing things:

They plan…..together with the commissioners, service users have the unique opportunity to help shape the future of the maternity services in the local area. For example, because of user testimonials provided by our MSLC to the clinical executive, a new perinatal mental pathway is being developed in our local area by the CCG, which will greatly benefit thousands of women.

They oversee……our MSLC is involved in one off projects designed to improve maternity experiences for local women. We have designed information posters, are having an input into a “Welcome to the Ward” postnatal pack and have helped improve the birth environment on the Labour Ward. We also make tours of the wards, bringing a service user perspective and a fresh pair of eyes to the environment.

They monitor……our MSLC gains feedback from women through surveys, questionnaires and Walk the Patch both in the hospital and more recently in children centre health clinics in the community. That feedback is given directly to the lead health professionals of the Trust as well as the commissioners, who listen and act on our recommendations. Those improvements are then fed back to the service users, via social media and other means, so that we close the loop.

This type of work is not just being done by our MSLC. I know of countless other committees which are tirelessly working to improve services in their local area too. Our brilliant vice chair Michelle Quashie is planning a Women’s Voices conference in October and has asked me to present the achievements of our MSLC and others around the country, demonstrating how effective collaborative working can be. I am looking forward to showcasing just what has been and can be achieved then.

At our recent Whose Shoes event pledges were made at the end of the workshop about something that the delegates would do differently as a result of that day. These pledges have formed the workplan for our MSLC for 2016 and we will check to ensure that they have been carried out. MSLCs are true examples of #MatExp in action at a local level.

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We were also really pleased to see the importance of MSLCs highlighted on our beautiful graphic courtesy of New Possibilities.

For this blog I asked members of other MSLCs for their thoughts on why MSLCs matter. Responses included:

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Catherine Williams has written a lot about the importance of MSLCs in her blog https://birthandbiology.wordpress.com/

And from our MSLC Leaders Facebook group:

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And this from our vice-chair Michelle Quashie:

“MSLCs matter because it is gives all that are passionate about a Women’s Maternity experience a chance to join forces and make their hopes for better birthing world a reality.  It enables all members to be involved in ensuring this happens. It allows true collaborative working and keeps service users involved in decisions made about women’s maternity care and that of their family. It’s a safe place where women’s voices are heard, valued and respected. A Women’s experience is its driving force for that reason I am proud to be part of such a dynamic committee.

Initiatives like ‘Walk the Patch’ enable all women’s voices to be heard regarding the maternity care they are receiving. These voices from the community can then be filtered back to senior levels and actions are derived to improve the service as a result. WTP also gives the chance for those HCP that are providing truly women entered care the recognition they deserve.

I joined the MSLC after feeling very let down buy my personal maternity care. I knew I had to help change things for other women. Being part of the MSLC has enabled me to do that from the inside out. The work we have done and the wonderful HPs I have worked with has helped to restore my faith and feel empowered by being part of making change happen for others.

I hope that MSLCs get the recognition and support for the amazing work we are doing across the country. All that give up their time, do so because they are passionate and dedicated. MSLC’s should be mediatory for all trusts. How else can you ensure a woman centred service is given without women voices being heard in order to influence that service?”

Refreshed guidelines from NHS England, due for imminent publication, call for MSLCs to be run, maintained and funded by the CCGs. This is much needed, because in the current economic climate many MSLCs are fighting for modest but essential funding to continue the collaborative work they are doing. In addition, due to the unique nature of these committees it can be difficult for the commissioners to work out a mechanism for funding.

It is against this background, while MSLCs are struggling, that Julia Cumberlege, chair of the National Maternity Review, urges women in her introduction, “play your part…for your family and community … voice your opinions” as quoted at the top of this blog. MSLCs provide an ideal forum for service users to do just that. They are the ‘best practice model’ for shaping the future of our maternity services.

A petition has been started to emphasise the need for MSLCs in all areas. Please consider signing and sharing this petition so that MSLCs can continue the vital collaborative work they are doing at a local level, with volunteers’ expenses paid and commissioners everywhere listening and learning. https://petition.parliament.uk/petitions/121772

If you are not already involved with a local maternity group that feeds into an MSLC – or the MSLC itself, search online to see what you can find out about local provision. Contact your local CCG, your head of midwifery, local Healthwatch, or any pregnancy and parenting groups, such as the NCT and find out what’s happening. You can find out more about MSLCs at https://www.nct.org.uk/professional/mslcs

Laura James

Chair, Bromley MSLC

2016

Facebook: http://www.facebook.com/bromleymslc

Twitter: @BromleyMSLC

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What Does #MatExp Mean To You?

I had the privilege of hosting one of the weekly #MatExpHour Twitter chats last night, on the topic of “What Does #MatExp Mean To You?”  We had already received some thoughts on this topic via the #MatExp Facebook group, and I couldn’t wait to hear what answers we had from the gang on Twitter. I was not disappointed.  This campaign that Gill and Flo started has become something more than I think any of us could have imagined.  It is with much delight that I share with you what #MatExp means to those involved.

Those who couldn’t make the chat were keen to get in their thoughts in advance:

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Emma Jane Sasaru: “To me it embodies what I believe can happen when everyone works together to support families. It means that while many say we cannot improve things we really can. Helen Calvert and I always refer to the starfish story because if we all just make small changes they add up to big change. Always believe you can make a difference because you can.
Personally #MatExp has helped me so much. As many of you know I had PTSD from a terrible birth experience and poor care. #MatExp has given me hope that we can prevent this happening and we can make sure that families are treated with our ‘heart values’. It has helped in my healing, enabled me to meet some amazing people, make changes in my local trust and also further my work to raise awareness around perinatal mental health.
What I love is the passion, the genuine want to improve things for families and the fact that it comes from the heart. Any of you that know Gill and Flo will know this is be true. Thank you everyone and remember you can be the change you want to see.”

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Gill was worried about the limitations of Twitter when it came to explaining what #MatExp means to her, but started by sharing this article from The Edge.  You don’t have to ask for permission to make change!

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Cathy Brewster: “What I love about #MatExp is the coming together of people from diverse backgrounds. As a parent I have been able to directly talk to midwives, obstetricians, commissioners, researchers, MSLCs etc. about homebirth and have gained unique perspective and insights from them all. And I hope they may have gained something useful from me too. #MatExp certainly made it easy for me to get our homebirth posters out there and it is wonderful to see them being used all over the place. The other thing I love about #MatExp is that it’s a platform for learning. It has opened my eyes to so many new maternity issues that I knew nothing about. So a big thank you from me to #MatExp”

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I had shared some wonderful blogs in advance of the chat, this one from Emma Jane Sasaru “Why The Wonderful #MatExp Has Given Me Hope”, and this from Victoria Morgan “Reflecting on #MatExp and the Impact it is Having”.

A bit more from Facebook:

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Lucy Ruddle: “I found it really useful when I was pregnant, to discuss the choices I had and why certain things were offered / what various hasty discussions with HCPs actually meant etc. So pretty much, a really useful source of good information.

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Read Gill’s Stellar story here!

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Susan Parker: “Even though I haven’t been involved for the longest time, for me it’s about parents being able to share their stories and for HCPs to be able to listen and reflect. It’s about sharing information and collaborating. And at times it’s about having a bit of a debate about a certain topic – which is of course a great thing to listen to a different viewpoint that you may not have considered.
On my radar were things like compassionate care, mental health and a mother’s choice. But my eyes have been opened to way more than that because I hadn’t previously experienced those issues, but I can talk to women who have and learn from them. I feel a blog post coming on (but maybe at some point in the future!) would love to do more with #MatExp.”

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Michelle’s wonderful blog post about what the Bromley MSLC #WhoseShoes event meant to her can be found here. And Bromley MSLC had got their thoughts in ahead of time:

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What is is about lemons?!  Find out here.

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Have you seen Flo’s amazing Lithotomy Challenge? Read about it here. Amazing to see the people who got involved!

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Natalie Finn: “For me it’s knowledge, understanding, support and passion. As an aspiring midwife, I want to extend & broaden my knowledge and there truly is a wealth here. As a mother of 4, I have knowledge of pregnancy/labour/birth, but simply from my perspective and reading others experiences, feedback and action taken interests me immensely. To be a well rounded midwife, I feel I need to see things from all aspects and perspectives, the mothers/families most importantly. Equally my entire maternity experience has been wonderfully positive largely down to having the same wonderful midwife for 6 pregnancies, 2 losses and 4 births over the span of 8 years!! I’m passionate about normalizing birth as a whole as well as home birth, breastfeeding (despite being a reluctant bottle feeding mum!), continuity of care. I also value the level of passion and support shown in this group. No question is too difficult, the cup of #MatExp runs over with understanding and it’s rare to find a community such as this that just so NICE!

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Look what happens when you JFDI! I didn’t ask permission to do the #MatExp Survey!

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Gill Phillips made this wonderful film which also demonstrates what #MatExp means to her.

At the end of the day it’s all about women and families.

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Because some things never change.

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What does #MatExp mean to you?

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Women’s Voices in #MatExp – Your Doula

I was asked to do a talk to student midwives at Salford University this month on the topic of “Women’s Voices” in maternity care.  As part of my presentation I included the voices of the midwives who work in maternity care, and a reminder that there are many other women for whom maternity care is their professional, as well as perhaps their personal, experience.  “Women’s Voices” in maternity care should cover the midwives, obstetricians, health visitors, doulas who care for us, as well as the women giving birth.

So I decided to start a series of blog posts on “Women’s Voices in #MatExp” from the point of view of those working in maternity, and this is the second of those.  This is Maddie McMahon’s experience of being a doula.  Thank you so much to Maddie for agreeing to write for us.

You can read the first blog in the series here.  And yes, I will be doing a “Men’s Voices in #MatExp” series too.  Because this campaign is about all voices.

Helen.x

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Maddie McMahon is a doula, doula mentor, doula course leader and breastfeeding counsellor in Cambridge. She is also a member of the board of Doula UK. She supports women using the same hospital she, herself, gave birth in and has been a staunch supporter of that hospital ever since, sitting on the MSLC since 2004.

She is author of ‘Why Doulas Matter’, published by Pinter & Martin in 2015.

Find out more about doulas at http://www.doula.org.uk

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I have been a doula for 13 years and have supported hundreds of women, either before their birthing, during their labours or afterwards. I have been facilitating an initial doula preparation course since 2008 and have been mentoring doulas and intimately involved in the evolution of the doula community in Britain since early on in the history of Doula UK.

In all those years I have learned more about what a doula is not, than what a doula is. Every time I think I might have got a handle on the ‘definition of a doula’, my understanding and perception shifts again. The definitions that do the rounds on the internet can be shallow, to say the least and, at best, undermining and dismissive of the incredible talents and abilities that women bring to this role.

I see all sorts of women being called to serve the mothers of their communities. There are women, like me, who felt a gaping hole or a contrast in how the time of transition into motherhood can feel so very different with and without psycho-social support.

There are women who feel betrayed and let down by their health professionals. They may be fighting birth trauma or PTSD or just a deep sadness.

But there are also mothers joining the community now who have been supported by a doula themselves, feel ecstatic about their birth experience and have been inspired to pay it forward.

There are women who, despite all their protestations of loyalty to their careers, found that motherhood remade them, in a fundamental way, bringing them to a realisation that ‘work’ needs to fit around children, nurture our souls and service our communities if it is to be truly worthwhile.

Some come to the role from an academic direction. They are incredibly bright PhD students or researchers, for example. They are interested in motherhood from a sociological, anthropological, political, psychological or philosophical standpoint. They may be activists or campaigners.

Then there are the Human Rights doulas, the ones interested in things like consent, maternal rights and responsibilities. They may have worked in sex and relationship education, or in women’s advocacy or legal settings.

Related, are the doulas who come to the work through their work with social services, or other support of vulnerable or hard-to-reach groups. I know many doulas who started off working with Birth Companions, working with women in prison, or as Homestart volunteers, in teenage pregnancy units, or are Maternity Support Workers..

And there are those who see birth as merely one step on a female journey, all of which deserve emotional and practical support. They support their community of women through menarche, marriage and divorce, abortion and baby loss, birth, breastfeeding and beyond, right up to menopause and sometimes doula families through the last and ultimate transition – death.. They are the white witches, the humanists and the pagans, the searchers for and creators of ritual and ceremony, the red tent facilitators, the women’s circle founders…

The ‘breastfeeding doulas’, through their voluntary work as breastfeeding counsellors, come to see that the challenges women face initiating and maintaining breastfeeding are often down to wider social and familial pressures. They begin to see these pressures and understand that, much as we can suggest to women to go home, sit and enjoy nursing their newborn, it doesn’t magically get the washing up done. The hour they can spend with women in the breastfeeding clinic doesn’t give them the space and time to explore the social attitudes that invisibly pressurise them to supplement with formula, or sleep train, or help their partner take a more active interest in the baby.

Related are the ‘babywearing doulas’ and the nanny and childminder doulas who, again, have come to the work through close contact with new mothers…who have seen close up that mothers of newborns need a particular type of peer support that the doula ethos perfectly encompasses – that time, and space we can give. That unconditional listening ear. That ability to help a mother access and trust her own mothering instincts. The way a doula supports a mother to do the mothering, and supports the partner/father too to step up and find his skills and abilities as a parent. The doula way of somehow ‘de-medicalising’ motherhood.

And lastly, but certainly not least there are the midwives. Some are retiring. Some have been out of the midwifery loop for a while and are choosing between a return to practice course or the doula route. Others are, quite literally and very sadly, at the end of their tether with the NHS and the constraints it places on midwives and mothers. They often feel like they can’t practice in the way they would so love to; supporting women through the whole journey. Continuity of care, pressure to follow guidelines and management that pays mere lip service to issues like individualised care, consent and compassionate care, have driven them to throw in the towel.

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As you can see, many of these women might be bringing baggage to the role. They may well have conscious or unconscious axes to to grind. It is through doing a doula course that we aim to create a safe space to process and contain this baggage, to become conscious of our worldview and how it might create the version we see of the world. We begin to practice ways to bring ourselves back to the women and families we serve, to see the world through their eyes and to therefore support them unconditionally and without judgement. Because it is this lack of an agenda, a lack of micro-managing guidelines and regulations that allow families to relax into our presence and for doulas to become a trusted part of the family.

All experienced doulas know that we are, in some respects, extremely lucky. We revel in the luxury of not having to follow guidelines, merely supported by the philosophy and Code of Conduct that our community has created for itself. We are free to build deep and abiding relationships with women, their partners and their children. We get to listen to her deepest fears and anxieties, support her to find solutions to her practical challenges and gain a deep understanding of her desires for this birth and beyond. We never, ever make the mistake of assuming that women might hold the experience of childbirth above the safety of themselves and their babies. Every working day teaches us that this idea is ludicrous. We see the birth trauma, the family dynamics, the physical and mental challenges that explain a woman’s choices. Really, really close up, it all, always, makes sense.

So, we have this deep, vital knowledge of a woman and why she wants what she wants. We have seen her do her research, read studies, talk to professionals, lay/peer supporters, friends and family. She has worked it through in her mind and her heart. She understands the risks and benefits of the choices she is making. We walk with her on this journey, every step of the way. So, when that journey gets to the point where we might be sharing a space with midwives or obstetricians, we have to seamlessly move from being a team of 2 or 3 and move aside in a loving way to bring these professionals into the circle so that we can create a loving circle around the woman.

That dance can go in a number of different directions, depending on the circumstances. There are some common challenges that can prevent good relations between doulas and staff in the birth room. One of them is possessiveness on the part of the doula. It’s wrong, and egotistical and something that shrivels as she gets more experienced, but I do think we can be forgiven, just a little bit, for thinking that we know better than the maternity staff what the woman wants and needs. It can make us a little defensive when they appear not to have read her birth wishes. It can make us a little grumpy when someone comes into an atmosphere that we have set up according to her wishes and switch on the lights and start talking loudly.

Perhaps we aren’t always super-skilled at handling those kinds of interactions. And perhaps there is more going in underneath those interactions than we doulas are sometimes aware of. If I ask if it’s possible for us to find a floor mat for a labouring woman, and that midwife has just been having a conversation with a colleague about doulas and how we have a ‘natural birth and all costs’ agenda, she may read more into my request than I intended.

If a VBAC couple ask a doula to tell the midwife they don’t want continuous monitoring, how can that be handled? The midwife may not know that they have done their research antenatally and made an informed decision. She may wonder who the hell this doula is, who appears to be talking for the couple. How does a midwife know that these parents aren’t being coerced or persuaded into a course of action without understanding all the possible ramifications? How does that midwife know she will be supported by her colleagues to support this ‘off-piste’ decision?

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Sometimes we are aware that there is an underlying atmosphere in the room based on these myths and misunderstandings about a doula’s role. Most of us have realised that it’s common for midwives to think that all doulas are frustrated, wanna-be midwives. Some think we meet the clients for the first time when they are in labour. Many think we are making an inordinate amount of money. Some see the intimate connection we have with the couple and are forced to contemplate why they, themselves were drawn to birthwork in the first place and how it hasn’t quite turned out the way they longed for.

Other times, when a member of the obstetric staff is in the room, the presence of a doula can wrong-foot and confuddle them no end. They are talking to a couple, counselling them through their options, and they suddenly turn to the anonymous, unnoticed woman in the corner, and ask her what she thinks. Even more confusingly, sometimes she asks a question that sounds surprisingly knowledgeable, or asks the couple if they need anymore information about the risks and benefits, or wonders whether there is an option to do nothing at all. She may suggest a few minutes of alone time to think and usher everyone out of the room. The woman they assumed to be Auntie Doris, is suddenly orchestrating the situation somewhat. Unsettling to say the least. Worrying, perhaps, and possibly anger-inducing.

After the baby is born and a community midwife or Health Visitor visits, it can be hard for her, in the time allowed for the visit, to get a real handle on who this woman is who appears to know her way around the kitchen and hangs around in the same room for the duration of the visit. Can the mother talk freely in front of her? Is the doula giving out of date or wrong baby care or breastfeeding advice? These concerns remain unsaid, but can prevent a real human connection.

We know that sometimes, both doulas and staff bring baggage, myths and ignorance of each other’s roles into the birth room. And most of the time, it is our communication skills, or lack on them, that prevent a deeper affinity and closer working practices developing.

All those talented women, with enormous hearts and the energy to support birth, whether they are clinical or lay, deserve to have the love and support of each other. We all have a massive amount to give.

Doula UK

Doulas are responsible for some of the most positive support networks in recent times: The Positive Birth Movement (PBM), Birthrights, the VBAC and Birth Choices support groups, social media support, breastfeeding support to name but a few. When those support networks work most beautifully is when lay women and midwives work together as equals, loving and respecting the complementary threads we each bring to the work. By working alongside each other, we both learn and grow, for the benefit of the mothers we support.

These communities we build, the rituals we rebirth – these are the special and truly valuable aspects of the doula movement. Perhaps now is the time to validate this grassroots work and build on the models we have set up, that are clearly spectacularly successful! 170 PBM groups in the UK alone. 40,000 followers of Dispelling Breastfeeding Myths on Facebook, 10,000 followers of Birthrights. Community support and advocacy is clearly needed – in fact women are hungry for it. And a lot of this community-building work is about supporting health professionals too. Many doulas work to provide community support to their local student midwives, or welcome community midwives to their mother-support groups. We raise money for our local hospitals, sit on MSLCs, try to raise awareness of the challenges facing maternity services, even march alongside them, with placards raised.

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From the Mandala Journey

We like to think of the mother, at the centre, as the sun, with her supporters orbiting around her in elliptical trajectories. Sometimes the midwife moves in closer, sometimes the doula or the doctor. We move further away to make space, to allow the mother room to make decisions and find her own answers. We move in closer when she needs physical or emotional support. We recognise each other’s skills and talents and make way for each gift to be bestowed with love and appropriacy.

When we all work more closely together, we see for ourselves how much the doula philosophy of information without agenda, unconditional emotional support and listening without giving advice have a tangible effect on outcomes – not just in birth statistics but on the mother’s state of mind and her emotional and physical ability to mother her infant.

Many doulas know that some of us could learn a little more humbleness from midwives and Obs and understand a little more quite how challenging, heart-breaking and downright soul destroying their work can be sometimes. And perhaps they could learn a little from us – about compassionate listening and keeping care woman-centred, tailored to her personality, preferences and anxieties. They could learn how our depth of relationship with a family may give us insights they don’t have, and not to feel defensive about that, or jealous.

So how can be build better understanding and cooperative working practices?

We see a lot of wonderful stuff going on already: doulas being asked to meet and speak with student midwives, so that they learn about our role from the beginning. It would be good if this were extended to student doctors too.

Some doula preparation courses will allow midwives and student midwives to sit in, for free – to get a taste of the doula community and an in-depth understanding of the many variations of the doula role.

Many doulas sit on MSLCs and Labour Ward Forums, which is a great way for us to share stories and client experiences and to learn more about the workings of the service and the challenges it faces. Mutual empathy is often very effectively built this way. It can work even better when the staff come out to sit in our forums – to visit our pregnancy support, breastfeeding and parenting support groups.

Social media is one way forward. The relationships and mutual respect between doulas and midwives has blossomed since we have begun to get to know each other on Facebook and twitter. We can really help each other – doulas helping the campaign to spread the knowledge of Optimal Cord Clamping springs to mind, or spreading understanding and therefore driving consumer demand for the ‘gentle’ or ‘woman-centred’ caesarean and ‘seeding the microbiome’. We are also able to provide each other with emotional support online and these friendships sometimes benefit mothers in very tangible, ‘I know exactly the right person for you to talk to’ kind of way.

We’d like to see us working together to create more models that provide psycho-social support for more vulnerable and hard-to-reach groups. That 14 year old girl may well have a wonderful specialist midwife to support her, and perhaps the young parents group at the local children’s centre to tap into. But wouldn’t it be wonderful to find out whether any of the local doulas have experience in this area or were young mothers themselves? Sometimes someone coming along who isn’t wearing a badge or a uniform, can make all the difference.

What about those women who ask for elective c-sections with no clinical indication? How many units have specialist counselling services for tokophobia or birth trauma? How many doctors or midwives suggest to women that a bit of peer support might help? Signposting to ‘patient support groups’ can make all the difference, as many women’s accounts of the effect of other mother’s positive stories attest.

There are doulas who have experience of working with women in prison, doulas who are also clinical psychologists, doulas who work exclusively with young mothers, or who work closely with Social Services or Homestart. There are doulas who have a lot of experience building rapport and trust with women who are suffering huge anxiety, and doulas who work with women with particular conditions, like Hyperemesis. There are doulas who specialise in breastfeeding support and who are also Breastfeeding Counsellors or IBCLCs.

Some of us receive direct referrals from maternity staff. Some don’t. Some hospitals have built formal, cooperative models that incorporate doulas, in a voluntary or paid capacity, into the system in some way. Sharing best practice, spreading ideas, building on the successes and working sustainability, mutual knowledge sharing and auditing into the processes seems to us to be the way forward.

Given that doula support appears to have a growing body of evidence to suggest we can increase normal birth rates, minimise cesarean sections and save the NHS money, it is surely time to begin to formalise our partnerships.

So if you are a health professional, why not resolve to find out about the doulas in your area? Perhaps invite them for a cup of tea – they’ll bring the cake.

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2016 Starts Here!

Personally I have had a bit of a Christmas and New Year break, but of course #MatExp never sleeps!  There have been plenty of blogs, new ideas, events planned and meet ups occurring all over the festive period.  We have had new people join the Facebook group, new ideas suggested for #MatExpHour and lots of us are speaking at events around the country in the coming weeks and months.

It seems five minutes since the fantastic #MatExpAdvent initiative came to an end, but here we are on the eleventh day of 2016 and I need to dive back in as otherwise I’ll be left behind!  This wonderful round up from Gill Phillips inspired me this morning to get back on the crazy horse…..

 

Our last #MatExpHour before Christmas, led by the wonderful 23weeksocks, was on the topic of Taking #MatExp Into 2016.  There were some excellent suggestions for actions and initiatives, so let’s take a look and then get cracking!  What would you like to do?

MSLCs

The NCT has developed a new practical guide to running an Maternity Services Liaison Committee (MSLC), “From Good Practice to Trouble Shooting”.  MSLCs are a big part of #MatExp, and there are some exciting WhoseShoes #MatExp MSLC events coming up very soon!

Bromley MSLC

Kings MSLC

Are you already a member of an MSLC?  What has your group got planned for this year?  Is there an MSLC in your area that you can join? Definitely a lot going on around the country – let us know how #MatExp can support your MSLC, joining hands around the country!

BerksMSLC

Rachel

Groups

It was also suggested that #MatExp could work more closely with the fantastic 1001 Critical Days campaign.

1001CriticalDays

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Are you involved with this project?  How can #MatExp best support the campaign, and vice versa?  Do you have some fresh ideas about the conception to age 2 period?  We have many Health Visitors involved in #MatExp and their input here will be invaluable.

The next suggestion was harnessing the power of the next generation of midwives via the country’s Midwifery Societies.  Are you a member of a MidSoc?  How can you collaborate with #MatExp?  Could you host a WhoseShoes event?  Do you have events coming up where #MatExp could be represented?  What is on your agenda for 2016?

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MidSoc

My aim for 2016 is to try to take #MatExp to those not on social media.  How do we engage with healthcare professionals (and parents) who are not on Twitter and Facebook?  Looks like we will have to resort to good old fashioned pen and paper!  Or at least keyboard and printer.  Who in your trust would you like to tell about #MatExp?  Get in touch and help me to spread the message further!

pen and paper

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The big thing we are all waiting for is the report from the National Maternity Review.  At the Birth Tank 2 event Baroness Cumberlege had hoped that it would be published on 31 December 2015, but unfortunately it is not yet available.  Once it is here we can get stuck in with implementing recommendations at a local level.

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And what else have people suggested?  #MatExp is about all voices, everyone getting stuck in doing what they can, when they can, where they can.  A few more ideas to get you inspired:

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Anyone wanting to order #MatExp stickers and other resources can do so here.

What’s your plan?  What is happening in your area?  What needs to be done?  What can be built upon?   Who needs to be involved?  What small things can you do?  What BIG things can you do?  Whatever you are up to remember to tell us on Twitter at hashtag #MatExp, join in on Facebook, comment on this blog post, send us a message by carrier pigeon, write it on the sky…..  The #MatExp train is steaming down the track.  All aboard for 2016!

 

Helen Calvert

@heartmummy

2016

 

Share the Word About MatExp!

Links Library

A full list of links to articles and blog posts on the #MatExp Focus topics – updated weekly.

Taking #MatExp into 2016

#MatExp In Action – Latest Projects from the Maternity World!

Digital Technology – National Maternity Review

First & Second Trimester Loss Study Day – The Pinks N Blues CIC

GPIFN – GP Infant Feeding Network

Growing Families Conference – Manchester

Homebirth Conference – Manchester

Hospitalbreastfeeding – campaign for better breastfeeding support on paediatrics

Life With Baby, Kent – online peer support for those experiencing postnatal mental health issues

LTHT Maternity Event in Leeds – Leeds #MatExp WhoseShoes workshop

MyBirthMyBody – from Maternity Matters

Open Letter on Breastfeeding – The World Breastfeeding Trends Initiative (WBTi)

Perinatal Mental Health Network

PND&Me – updated website

Showing Thanks – sharing a “thank you” with maternity teams

Tell Me A Good Birth Story

Women’s Voices in #MatExp – blog series

Antenatal Preparation – Expectations vs Reality

Why Are So Many Mums Struggling? – Emma Jane Sasaru

Developing Confident Parents – classes from Vesta Birth and Parenting

Anxiety

Time to Act on Anxiety – #MatExp

The Truth About Hypnobirthing – Suzy Ashworth

How Hypnobirthing is Taking the Fear out of Childbirth – Kirsteen O’Sullivan

Breathing Life – The Power of the Breath – Doula Paris

Fear of Childbirth, or Fear of Medicalisation? – Sara Wickham

Women’s Choices, Expectations & Experiences in Childbirth – Claudia Malacrida

Disenfranchised Grief in Postpartum Women – Rumyana P. Kudeva

Therapy after a Traumatic Pregnancy – Louisa Leaman

Overcome Birth Trauma – Natal Hypnotherapy

Postnatal Recovery – Natal Hypnotherapy

Trauma Releasing Exercises – TRE College

Pregnancy After Loss Support – Facebook page

Baby Loss Study Days – Midwifery & Nursing Online

Managing Symptoms of Birth Trauma

Maternity Matters Peer Support Facebook group

Centrepoint Stress Relief Tool website

Guidance and Help – Campaign for Safer Births

Overcome Birth Trauma website

Birth Trauma Association Facebook group

What do you want people to know about birth trauma?

A health baby is not all that matters – Milli Hill

Birth Trauma and PTSD – Raising Awareness – Emma Jane Sasaru

Birth after Trauma – Alisha’s Birth Story – Emma Jane Sasaru

Promoting Respect and Preventing Mistreatment during Childbirth – BJOG

This is what I want you to know – ghostwritermum

Pregnancy After Birth Trauma

Vaginal Examinations in Labour – Magical Birth

Risk, Safety and Normal Birth – Magical Birth

A Healthy Baby Isn’t All That Matters – Double Crunch

Those Two Blue Lines – ghostwritermummy

Letter Of My Life – ghostwritermummy

Pregnancy After Birth Trauma – ghostwritermummy

What Happens When We Don’t Listen To Women? – ghostwritermummy

Choosing a Caesarean, and Having That Choice Refused – SouthwarkBelle

Pregnancy After Birth Trauma – heartmummy

Body Image

Birth Trauma & Body Image – ghostwritermummy

The Post-Birth Body – ghostwritermummy

The Shape Of A Mother website

Body Image of Mothers – Diana West IBCLC

Breasts, Body Image & Sexuality – Lisa Hassan Scott

007 breasts website

Bare Reality website

Breastfeeding Support On Children’s Wards

#MatExpHour Round Up – heartmummy

HospitalBreastfeeding – heartmummy

Caesarean Birth

A Perfect Caesarean Section, Complete with Skin-to-Skin – Krystal Cleaver

Caesarean Section – Let’s Dispel Some Myths – Our Rach

Caesarean in Focus – Clare Goggin

One Year – Laura Wood

Another Section is not a Solution – Laura Wood

Rachel’s Home VBAC – Gentle Caesarean Birth – Cambridge VBAC Friends

Rachel’s Story of a Gentle Caesarean Birth – Cambridge VBAC Friends

PND and Caesarean Section – Have You Seen That Girl?

The Early Section – Family Fever

The Premature Section – Family Fever

The Crash Section – Family Fever

The Last Section – Family Fever

Ghostwritermum Caesarean Birth posts:

Care Quality Commission Maternity Survey

2015 Survey Results – CQC

Maternity Care Experiences – CQC

Share Your Experience – CQC

Musings on the CQC Survey – Florence Wilcock

Still Some Way To Go – Gill Phillips

My Maternity Care for #YourMaternityCare – Leigh Kendall

#MatExp Lithotomy Challenge – Florence Wilcock & Gill Phillips

Visual Aids for Birthing Positions – Royal College of Midwives

Round up of Twitter Chat – Florence Wilcock

Dads & Partners

Time to Act for Dads & Partners – #MatExp

Dads Matter – Mark Williams

Fathers Reaching Out – Mark Williams

Postnatal Depression in Dads – NCT

Fathers’ Mental Health – Institute of Health Visiting

PND Dads: What You Can Do – Dad Info

Birth Trauma – Dads & Partners – Caesarean In Focus

Being a Birth Partner – The Frog Pyjamas

#MatExp for Deaf Parents

Deaf Nest Conference 2016 – book now!

DeafNest Conference

Deaf Nest Promotional Video

Learn Some Basic Sign Language – Action on Hearing Loss

Why all NHS staff should learn some Basic Sign Language – NHS Change Day

Breastfeeding Support webchat – National Breastfeeding Helpline

Debriefs

What is the Purpose of Debriefing Women in the Postnatal Period? – RCM

Why Hasn’t Birth Debrief Worked Very Well? – Birthing For Blokes

Birth Debrief – Alternative Ways of Supporting Trauma event

Closing The Bones (alternative ways of addressing trauma) – MagicalBirth

Psychological Debriefing is a Waste of Time – The British Journal of Psychiatry

The Importance of the Birth Debrief – Lauren Berrett

9 Words I Wish I Never Heard – Meg Kant

eRedbook

eRedbook – your baby’s digital health record

Use of the word “failure”

I wish I could ban the word “failure” – Emma Jane Sasaru

#MatExpHour Failure to Progress – Mandy Bellenger

Midwives and Health Visitors – collaborative working

Time to Act for Better Collaboration – #MatExp

What Health Visitors Do – The Basics – Jenny Harmer

Health Visiting and Midwifery Partnership Pathway – Public Health England

#MatExp On Tour in Manchester – heartmummy

#WeMidwives Twitter chat summary – WeMidwives

#WeMidwives Twitter chat round up – heartmummy

A health visiting / midwifery partnership from UCLan – Charlotte Smith & Neesha Ridle

Hyperemesis Gravidarum

Pregnancy Sickness Support website

Pregnancy Sickness Support on Facebook

The Unempathic Society – spewingmummy

Spewing Mummy on Facebook

The Stigma of Taking Medications for Sickness in Pregnancy – Caitlin Dean

Neurodevelopmental delay in children exposed in utero to HG – European Journal of Obstetrics & Gynaecology

Familial Aggregation of Hyperemesis Gravidarum – University of Southern California

Hypnobirthing

The Truth About Hypnobirthing – Suzy Ashworth

Using Hypnobirthing Techniques in Labour – Doula Paris

Hypnobirthing – Sprogcast Episode 10

In the Eye of the Beholder – Emma Jane Sasaru

It Wasn’t My Fault – Keeping It Eclectic

Induction of Labour

Induction – Cascade – Caesarean Section? – SouthwarkBelle

Intrauterine Growth Restriction

An IUGR Story – Child Growth Foundation

IUGR – A Guide for Parents & Patients – Child Growth Foundation

Fetal Growth – Perinatal Institute

Intrauterine Growth Restriction – Patient website

Made to Measure Campaign – MAMA Academy

Made to Measure, A Perfect Fit After All – ghostwritermummy

An IUGR Baby, The Story With A Happy Ending – ghostwritermummy

Maternal Mobility and Malposition in Labour

Pre-Chat Notes – Unlocking Birth

Does Baby’s Position Matter in Labour? – Unlocking Birth

Training – The Breech Birth Network – The Midwife, The Mother and The Breech

Emerging Evidence for Upright Breech Birth – The Midwife, The Mother and The Breech

Application of Assisted Deliveries Ball – CNKI.com

Who Decides The Position For Birth? – Journal of the Australian College of Midwives

spinningbabies website

Help! My Baby is Back to Back – Dr Matthew Prior

Twitter Chat Round-up – Unlocking Birth

Maternity Notes – Access & Language

Accessing your Records – birthrights

Understanding your Notes – Birth Trauma Association

What Does #MatExp Mean To You?

The #MatExp Lithotomy Challenge – Florence Wilcock

#MatExp Survey – The Results Are In! – heartmummy

Why the Wonderful #MatExp has Given me Hope – Emma Jane Sasaru

Reflecting on #MatExp and the Impact it is Having – Victoria Morgan

Putting the Heart into #MatExp – Heart Values – Emma Jane Sasaru

The FUNdamentals of Building a Change Platform – Gill Phillips

This Time Last Year….. – Gill Phillips

Proving That You Don’t Have To Ask For Permission To Make Change – Gill Phillips

WhoseShoes Confirmed That My Shoes Have Climbed A Mountain – Michelle Quashie

No Hierarchy, Just People – Gill Phillips

Twitter Chat Round Up – heartmummy

National Maternity Review Report

National Maternity Review Report – NHS England

Safe Care is Personalised Care – Mary Newburn

Birthrights Responds – Birthrights

Update on NHS Maternity Review – Royal College of Midwives

Positive Birth Movement Responds – Positive Birth Movement

What Can We All Agree On? – Dr Matthew Prior

Cherished Memory – Roy Lilley

A Personal View From A Member Of The Review Team – Annie Francis

What Does Choice Mean? – southwarkbelle

Thoughts on the National Maternity Review – James Titcombe

Night-time Support on the Postnatal Ward

Pre-Twitter Chat Information from Caesarean in Focus

Equal Rights and Staying Overnight – 23weeksocks

The Longest Night of my Life – heartmummy

36+2 Dangerously Understaffed – heartmummy

Time to Act for Dads & Partners – #MatExp

Postnatal Care – My After the Birth Story – SouthwarkBelle

Postnatal Care after CS – A Poem – helenyoungmidwife

The Postnatal Period should not be an Endurance Test – Beyond the Birthing Suite

Twitter Chat Round Up – from Caesarean in Focus

“Normal” Birth

Normal not Normal – Southwark Belle

When Normal Seems To Be The Hardest Word – MatExp

Normal Birth Is Not Always Normal – heartmummy

What is ‘Normal’ Anyway? – Leigh Kendall

Risk, Safety and Normal Birth – Selina Wallis

Peer Support – What Is Helpful?

Birth Trauma Association Facebook Page

PND and Me – host of #PNDHour on Twitter

How a Modern Day Village is Helping me Raise my Child – Maya and the Moon

Pregnancy Complications

Stories from the Heart – congenital heart defect – heartmummy

HELLP Syndrome – Still Processing the Events 10 Months on – Leigh Kendall

An IUGR Baby: And Then It’s All Over – ghostwritermum

Postpartum Hypothyroidism, Pregnancy and Being a Bit of a Divvy – SouthwarkBelle

Pre-Labour Premature Rupture of Membranes (PPROM)

Little Heartbeats website

Till It Happens To You – PPROM Aware Video

We Are Not Alone – Little Heartbeats PPROM Awareness

PPROM Awareness on Facebook

Stillbirth

#MatExpHour Stillbirth Storify

Stillbirth Stories website

MAMA Academy website

The Day The Whole World Went Away – Shoebox of Memories

Wake Up Babies – Shoebox of Memories

It’s Not All Rainbows and Unicorns – Shoebox of Memories

NHS Maternity Review – Our Say – Shoebox of Memories

Taking on Stigma and Taboo – Shoebox of Memories

Saving Babies’ Lives Care Bundle – NHS England

Baby Loss Study Days – Midwifery & Nursing Online

Remember my Baby website

Reduced Movements in Pregnancy – ghostwritermummy

Reduced Foetal Movements – Maternity Care in the Media – Let’s Talk Midwifery

Bereavement Support for Parents – Leigh Kendall

Harrogate Dad

Student Midwives for #MatExp

StudentMidwife.NET website

Thou Shall Not Pass – Alison Brindle (student midwife)

Why Your Voice Matters

When There Are No Words – The Smile Group

Letting My Voice Be Heard – Emma Jane Sasaru

Someone Listened To Me – Ghostwritermum

It’s Complicated – heartmummy

Do Not Silence Me – Emma Jane Sasaru

Gratitude – heartmummy

World Prematurity Day

Thoughts for World Prematurity Day – Leigh Kendall

Twinkle Twinkle Little Star – 23WeekSocks

Navigating the Challenges – NICU – Emma Sasaru

Not Even A Bag Of Sugar blogspot – Kylie Hodges

Social Media and Premature Babies – Kylie Hodges

PTSD – The Hidden Cost of NICU – The Smallest Things

Neonatal Care Services Need Investment Now – The Guardian

Flo WPD

Share the Word About MatExp!

The #MatExp month of ACTION begins today. Why women everywhere need the Maternity Review Team to engage!

June is not going to be dull…! For me personally, this is a big week – I am looking forward to speaking at the NHS Confederation Annual Conference on Wednesday. The session I am involved in, chaired by Dr. Mark Newbold, is about urgent care of older people. The emphasis of my contribution is around prevention, holistic approaches and joined-up systems, ensuring that life is not over-medicalised – the simple things that make life worth living.


Mum, known on Twitter as @Gills_Mum, is extremely interested in my talk and threatening to write a blog of her own…

Preparing my presentation brings home yet again the parallels and key themes across all areas of my work. Hardly surprisingly really as we are all people; aspirations, hopes and fears and the desire to have control over our own lives do not suddenly change just because we get older.

FlamingJuneToday starts the month with a bang.

Our #MatExp campaign, to improve the maternity experience of women everywhere, goes up a gear.

For anyone who has been twiddling their thumbs and wondering what to do with themselves since the end of the #MatExp alphabet (yes, we know who you are!), you will be delighted to know that June is a month of action!

#MatExp #FlamingJune – we are just waiting for the weather to catch up … although perhaps it is just as well it is a bit cool outside or the energy burning in this remarkable grassroots campaign might just start some forest fires!

Sheena Byrom is an extraordinary woman. As her action for June, she is posting blogs from individuals who have information to offer to the new team set up to conduct a national review of maternity services in England, led by Baroness Julia Cumberlege. We all feel passionately that this new review team needs to engage with the action-focused, inclusive work of what has now become an unstoppable social movement for positive change.

And so it is a huge honour that Sheena invited Florence Wilcock and me, as the initiators of the #MatExp campaign, to write the opening blog and tell everyone what has been happening and why is it so important for these links to be made.

Sheena is publishing our blog today on her site. But for ease you can also read it below. We are all working together in a very strong collaboration and taking the view that the more different channels we can use to spread the word and involve more and more people, the better!

OUR GUEST BLOG FOR SHEENA BYROM IS REPRODUCED BELOW…

We would like to kick off Sheena’s June blogging series with a strong call for the Maternity Review Team to engage with our fabulous #MatExp grassroots community. We need to build on all the amazing work that has been happening over recent months through this passionate, inclusive group.

So what is #MatExp and how did it come about?

A lot has been written about this already – for example, Florence’s ‘in my shoes blog’.

Florence and Gill made this short video when, due to the phenomenal grassroots energy it had inspired, #MatExp was included as a major campaign in NHS Change Day, 2015.

300- 2 Graphic record from our #MatExp Whose Shoes? workshop, held at Kingston Hospital. New Possibilities are the graphic artists.[/caption]

Inevitably the themes are similar between the different sessions but with a strong local emphasis and most importantly local ownership, energy and leadership.

On Gill’s original blog there are LOADS of scrolling photos at this point showing #MatExp #Whose Shoes workshops and the wider campaign in action – take a look!

It would be easy for the NHS Change Day campaigns to lose momentum after the big day itself, (11 March). #MatExp has done the opposite, continuing to build and bring in new people and actions. #MatExp #now has 110 million Twitter impressions. We have just finished the ‘#MatExp daily alphabet’, a brilliantly simple idea to get people posting each day key issues related to the relevant letter of the alphabet.

This has directly led into the month of action starting today, 1 June!

Helen Calvert set up and ran a survey of health care professionals. She had 150 responses within about 10 days and analysed and reported the results – an extraordinary contribution.

We have a vibrant Facebook group (please apply to join – initiated by fab Helen Calvert @heartmummy) and the brand new website (LAUNCHED TODAY! – huge thanks in particular to Leigh Kendall @leighakendall) set up by the #MatExp team of mums who are incredibly focused, working long hours – all as volunteers. We are all absolutely determined to keep working together to improve maternity experience for women everywhere.

Gill Phillips and Florence Wilcock

There will be LOADS of ideas to help you…
So please get involved.

Share the Word About MatExp!